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What a Summer


My daily dealings with Multi System Atrophy
Monday, 30 June 2003
Fall down and yell ouch

I fell down on Thursday ruining my weekend plans. I twisted muscles in my thigh and calf causing pain - if on a scale from one to ten it would be a ten. My pain patch didn't even cut the edge. I called my neurologist and I got his Physicians assistant. She prescribed Vicodin and Flexeril.


I can't recall being in this much pain. I missed two picnics but did some genealogy research. I can't sleep. I'm exhausted.


Sara came home with a guinea pig and Aidan came home with a hamster from one picnic. Our friend apparently has too many critters. We are watching my sister in laws two little dogs while they enjoy Florida. Thus we have four dogs, four fish, 1 frog, 2 parakeets, a guinea pig and a hamster. I'm being over run by scaley furry things.


It's been a tough week but to see the kids with their animals makes me happy - lets see how long it takes before we have to remind them to take care of their animals. Growing up I always had animals - guinea pigs, hamsters, a ferrett, fish and a white rat named Ralph (after Ralph Cramden)


Posted by msainfo at 3:43 AM EDT
Saturday, 21 June 2003
Graduations
graduationcap

This past Thursday my son graduated from Kindergarten and yesterday my daughter graduated from Elementary School. Getting to Thursday's event was not too hard but I was dragging Friday morning. It would be a ceremony over teo hours long and a reception with a DJ after.

My son's graduation was fun and cute, His teacher told me that she forgot to tell my wife that my son excells in reading. She also commented how much he has grown thoughout the year and how she now sees the fun-loving child we told her he was at the beginning of the year. In September she was worried that he was shy - Not my son! Wrong kid I thought. My daughter yes, but bot my son. He chose McDonalds for dinner but we forgot to tell him that the party would be tomorrow night along with his sister's. We all went to bed early.

Aidan woke up crying, "My special day is over!" My wife explained how we are getting a Star Wars cake (Sara didn't care) that had their names on it and he could pick out a video as a gift. Subway was the menu choice of Sara so that got him even more excited. She also told him that they were celebrating summer birthdays in his class that day. His is in August.

Sara's graduation statred at 9:00 AM with a video of baby pictures and updated pictures of all the 4 graduating classes - yes FOUR classes. The town has built a new school for next year! We have 6 elementary schools now I think. It was a humid day so I dressed in my khaki pants and new short sleeve dress shirt that Siobhan had bought me. I wore my sneakers since I knew I would be in my wheelchair anyway.

It was a beautiful ceremony and Sara was among the STAR students as they call them. The students have to have so many A's and a certain GPA. She looked beautiful in her dress and heels. I was so proud of my princess. After graduation there was a party with a DJ at the Marriott but we were late. Our friend's father passed out at school and Siobhan the nurse came to the rescue. The school nurse was unsure of what to do as she only deals with kids. Apparently he had a cardiac episode. The doctors told them that Siobhan probably saved his life.

We got to the party and not a single male parent would talk to me. A few of the women I know who work on committees with Siobhan felt bad and came over as I sat there by myself. It was still wonderful to see my daughter dancing with her Mom and her friends. More important than graduation was the fact that the Fifth book in the Harry Potter series came out today. She was up early to snatch one up.

I felt real odd at the party and it was not like I could get around and start a conversation my self. I was very hurt but tried bot to let that ruin the joy of the occassion. I waited till bedtime to cry.


Posted by msainfo at 12:32 PM EDT
Saturday, 14 June 2003
Loneliness
No one understands how lonely it is to be home all day and see no one but your wonderful wife and two great kids. Non one visits, no one calls. I hear all sorts of excuse. There even a quote in the Bible about negelcting ill people. I will have to look it up. I save it somewhere. It comes from the old Testament and it either blesses those that visit the sick or condemns those who don't visit sick friends. I can go places yet no one ever asks me. Sure I have bad days when I can't go anywhere but it feels like being in Jail. I am so lonely I cry.

Posted by msainfo at 8:00 PM EDT
Thursday, 12 June 2003
Gregory Peck
One of the last of my favorite actors to die! Spencer Tracy, Cary Grant, Harrison Ford, Sean Connery to name just a few of my favorites. Iloved Peck in To Kill A Mockingbird
I'm all alone as the rest of the family is at my son's Tee Ball Game. I ate a big dinner - two bowls of Beefaroni (that;s a lot for me) and now I feel like I could pass out. I think I'll just put the computer away and "pass out" in to sleep land. This humidity from the rain has made us all grouchy. Ok, falling asleep as I type zzzzzz.......

Posted by msainfo at 7:52 PM EDT
New Blog
Everyone, especially my wife has been telling me how important my site is, especially my journal. I haven't journalized (I looked it up in the dictionary because I knew there was no such word as journaled - I guess I can say blogged, blogging but not blogalize!) in almost 2 years. With the introduction of blogs, I thought that would motivate me even more.
Well I finally got around to it. I journal in a notebook almost everyday. Most of the things I "talk" about concern MSA but I also like to journal about politics, movies, friends, activities, religion - anything that affects my life or emotions on any given day. It's been raining like crazy here - very little sunshine.
My 5 year old, Aidan, had his Kindergarten picnic cancelled today. I was going to get my butt out of the house and go to take picture but it will be next Monday. Sara's fifth grade picnic was a big success yesterday but I didn't feel like hanging around with hormonal 11 year olds all day. We all got little sleep last nite due to the humidity - I got none even after taking my RestoriL. My whole body hurts from head to toe and my son is driving me crazy to play computer games. I have to surrender.
Take care,
Tim

Posted by msainfo at 4:19 PM EDT

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